Goodwin Invites You to a Conversation with Rare Disease Community Leaders
Summary
In global observance of Rare Disease Day 2023, the Goodwin Life Sciences Regulatory & Compliance group hosted an event to spotlight the critical work being done to address the 7,000+ rare diseases that impact more than 300 million people globally. The Goodwin team brought together global leaders in the rare disease community, including Justin Klee and Josh Cohen, Co-CEOs & Co-Founders of Amylyx; Bob Coughlin, Managing Director, JLL and Cystic Fibrosis Patient Advocate; and Tom DiLenge, Senior Partner, Global Public Policy, Regulatory & Governmental Strategy, Flagship Pioneering. The program featured three fireside chats to discuss what inspires these leaders, what challenges the rare disease community continues to face, what work lies ahead in the global effort to address rare diseases, and what we can do to help.
Access a playback of the program to learn more.
Speakers
- Julie Tibbets
Julie Tibbets
PartnerChair, Life Sciences Regulatory & Compliance Practice - Matt Wetzel
Matt Wetzel
PartnerLife Sciences Regulatory & Compliance